Author(s)
Phayvanh Sjogren, MD
Kelly Segars, BS
Caroline Schaffer, BS
Heather McGhee, MS, CCC-SLP
Christopher Discolo, MD
Affiliation(s)
Med. Univ. of South Carolina, Charleston, SC.
Abstract:
Feeding outcomes in Pierre Robin sequence following mandibular distraction osteogenesis
Background: This study was conducted to describe feeding outcomes in children with Pierre Robin sequence (PRS) that underwent mandibular distraction osteogenesis (MDO).
Methods: A retrospective study of children that underwent MDO at a tertiary pediatric hospital from May 2010 to July 2018. Demographic information included genetic syndromes, gestational age, presence of cleft palate, and other airway interventions. Outcomes were rates of gastrostomy tube placement and time to full oral feeds.
Results: A total of 34 patients underwent MDO and 23 of these children had PRS. Four of the patients had associated syndromes and 73.9% were male. The mean age was 3.58 ±2.5 years. The mean age at distraction was 2.7 months (range: 13 days to 2.8 years). Airway interventions included two (8.7%) tracheostomies and three supraglottoplasties (13%). The majority of children (87.0%) had an associated cleft palate. Seven (30.4%) patients received gastrostomy tubes. For the children that did not undergo gastrostomy tubes, time to full oral feeds was 17.2 ±8.2 days.
Conclusion: The majority of children with PRS in this study were able to avoid gastrostomy tube placement after MDO. Larger studies are needed to more completely understand the patient factors that increase the risk of additional feeding interventions despite MDO.